Your Name: Alexandra
Your Age: 25-29
Where do you live? Long Beach, NY
Your Profession? Administrative Assistant
How many years since you were first diagnosed? 6 months ago
What do you wish someone had told you when you were newly diagnosed? What exactly I could eat
What is a favourite go-to, safe food for you when you are feeling unwell? Bagels!
Do you have a hot tip for how to get through a colonoscopy or a funny colonoscopy story you'd like to share? When you come off of the anesthesia, don’t tell the doctor you wish you could kiss him!
Describe your relationship with IBD: Frustrating, disheartening often feeling like I want to give up
What would you like to share with this community about your experience with IBD? This has been the toughest road I have ever gone down. I am at a complete loss and don’t know where to turn anymore. I am 28 years old and constantly in and out of the hospital and unable to live a normal life. I feel lucky to know there is a community of people who are just like me, but also wish I had more answers.
What has been the most helpful things for you as you manage your illness? (This may be the medication you are on, your hot water bottle, your support system, an alternative medicine therapy, a book.. anything!): Support from friends and family, yoga and working out.